What is my daily life like living with gastroparesis? Every day is an adventure because I never know how I will feel.
What is my daily life like living with gastroparesis? I’m on disability at the age of 36. Couldn’t even get regular SSDI because I never accrued enough work credits. I’m sick everyday to some point & degree. I live with my parents now and my Mom is my caregiver. I live in constant pain to… Read more “Severe waves of nausea”
What is my daily life like living with gastroparesis? Every day is different and unpredictable. Today may have been a decent day and I left the house. Tomorrow, I may be puking more times than a drunken 21 year old who rode the tilt-o-whirl a dozen times too many. Today, I may be wishing to… Read more “Every day is different and unpredictable”
What is my daily life like living with gastroparesis? I don’t have GP myself but, as the parent of a daughter with GP I can say this: every day is a roller coaster ride. The constant fear and worry never stops. The knowing about the pain, bloating, nausea, etc., looking and seeing that she’s up… Read more “The constant fear and worry never stops”
What is my daily life like living with gastroparesis? Nausea and fatigue are a constant, pain is a surprise every day..never know when or how much…
What is my daily life like living with gastroparesis? I’m now alone about 90% of the time. No one including my family bothers with me because I’m “sick”. I’m nauseous and very bloated the minute I eat. I get very tired because of my meds. No one understands GP no matter how much I explain… Read more “Alone about 90% of the time”
What is my daily life like living with gastroparesis? I wake up usually in pain ..Its like being stabbed in my stomach ..I’m always weak from Malnutrition issues..I drink my breakfast which is a nutritious shake..if I don’t vomit I have burps with an after taste. I feel like I ate a bowling ball for… Read more “I miss my old life”
What is my daily life like living with gastroparesis? It’s like living on a roller coaster with no end in sight. And one that has so many twists and turns you can’t ever get two steps ahead of it.
What is my daily life like living with gastroparesis? Too limited my Life by Tiredness, weakness from Nausea, Vomiting and pain. This disease has weakened me, and damaged other organs. My Daily Symptoms are WEAKNESS, Dizziness, Fatigue, and Gastroparesis Treatments has damaged my Heart. Specifically the Ventricular area, having that damage, the Treatment is suspended.… Read more “This disease has weakened me”
What is my daily life like living with gastroparesis? Never knowing if I’m going to just be nauseated from a smell, just trying to eat (if I even get hungry), whether eating will make me sick, if for no apparent reason that I will get very sick or be in pain.
What is my daily life like living with gastroparesis? I have to take my day minute by minute. It begins every morning with being woken up by nausea. Then the vomiting begins. I try my best to get dressed and drive to work (having to pull over multiple times some days). Constant fear of eating.
What is my daily life like living with gastroparesis? It’s like a never ending battle within my own body! My family worries all the time! Smelling, seeing and even the thought of food makes me nauseous. Every event involves food, even watching television, there’s food! Some days I just end up throwing in the towel,… Read more “A never ending battle within my own body”
What is my daily life like living with gastroparesis? I spend a majority of my days in bed, eating what I can because I have to, not because I am hungry or desire to. Never making plans without a contingency plan. Pain and nausea dictates my schedule, and an outing has to be scheduled before… Read more “Never making plans without a contingency plan”
What is my daily life like living with gastroparesis? Simply exhausted from this disease. You never know when you’re going to have a good day 💚
What is my daily life like living with gastroparesis? My daily life is trying to keep nausea and acid reflux under control so I’m able to eat small amounts of food throughout the day. Life for me is to try hard to be really intentional with life choices and food choices to keep things as… Read more “Trying to keep nausea and acid reflux under control”
What is my daily life like living with gastroparesis? Nausea, extreme fatigue, stomach pain and swelling, side effects from meds including dizziness, drowsiness, blurred vision, memory loss. With all this, I find my anxiety goes up as I worry about carrying for my family, not being able to work, and alot of days, not even… Read more “Nausea, extreme fatigue, stomach pain and swelling”
What is my daily life like living with gastroparesis? Nauseous but hungry at the same time is awful. But a flareup is even worse! I don’t have a lot of energy most days. Sometimes walking hurts my stomach, like I can feel every vibration of every step, in my stomach, so I have to walk… Read more “Nauseous but hungry at the same time”
What is my daily life like living with gastroparesis? Too scared to eat at times, painful bloating, no energy. My every other day life since being diagnosed.
What is my daily life like living with gastroparesis? Constantly in pain, bloated, nauseous, so weak everyday is a challenge. Doctor’s don’t understand you they think it’s all in your head because you might look fine on the outside but in truth inside is a rollercoaster. I get depressed cause I can’t do what everybody… Read more “You don’t know what to expect next”
What is my daily life like living with gastroparesis? A guessing game, can be vastly different from day to day, week to week. Very difficult to plan anything or work or just to live. Some days it is an effort to just breathe and sometimes I have few symptoms and I am very grateful. My… Read more “Living life with Gastroparesis is a guessing game”
What is my daily life like living with gastroparesis? My daily life is me laying on the couch or bed, stinking from not having the energy to shower. Taking all day to do a few dishes, begging people for toilet paper, etc.. because I cannot work. It causes daily anxiety because I never know what… Read more “I never know what the day will bring”
What is my daily life like living with gastroparesis? I have anxiety, depression, fatigue, muscle cramps, pain, nausea, diarrhea, & I never know what my day to day will be like , It takes a lot out of me when I shower & do things.. It’s hard to make plans because I never know how… Read more “It’s Hard To Make Plans”
What is my daily life like living with gastroparesis? Pain, nausea, vomiting, diarrhea and or constipation, malnourished, headaches, body hurts, fatigue, muscle cramps, blood sugar bottoms out, hair breaks off and or falls out, kidney failure, UTI’s double vision, anxiety, panic attacks, dizziness. Every day is different..a basic catch 22..you never know what you’ll be… Read more “A basic catch 22”
What is my daily life like living with gastroparesis? Pain every day. Nausea if I eat.. Nausea if I don’t. Exhausted and dehydrated daily.
What is my daily life like living with gastroparesis? It’s like getting severely sick and never getting better. I wake up nauseous and go to bed nauseous, constant pain – the screaming out loud kind and never being able to go far because you don’t know how you will feel.
What is my daily life like living with gastroparesis? My daily life went from working my tail off 7 days/week to suddenly no energy. No nothing. Just sick. At that pesky little vagus nerve …bradycardia and tachycardia. Also Dysautonomia and Ehlers-Danlos Syndrome. It has meant I went from working (in my 30s) to being worn… Read more “I went from working to being worn out”
What is my daily life like living with gastroparesis? I always have nausea, abdominal pain and sick like I have to throw up all day. I force 1/2 a cup of food two or three a day. Very hard to move around because I feel weak. Threw up the other day with diarrhea since then… Read more “Sick like I have to throw up all day”
What is my daily life like living with gastroparesis? I wake up each day to nausea. Food is terrifying. Malnutrition is even more terrifying. We are battling our own bodies every day.
What is my daily life like living with gastroparesis? NO LIFE! I did enjoy flower gardening just too hard to keep them up now with the nausea 24 hours a day .The smell of food cooking makes me sick so fixing my husband something is hard then I cannot eat what I fix for him.… Read more “The smell of food cooking makes me sick”
What is my daily life like living with gastroparesis? Lots of planning around food, especially if I’m going out for the day or traveling. I hate getting sick away from home. Cancelling plans at the last minutes due to GP related pain. Avoiding events that are food focused.
What is my daily life like living with gastroparesis? GP is like being locked in a prison with no key.
What is my daily life like living with gastroparesis? I never know if it’s going to be a good day or a bad day. I do all the right things and still sometimes have flares that are debilitating. I am sick constantly so that I have learned to work and live with a degree of… Read more “I never know if it’s going to be a good day or a bad day”
What is my daily life like living with gastroparesis? Living in debilitating pain along with feeling nauseated all day. As well as the littlest things you do wears you down to nothing!
What is my daily life like living with gastroparesis? Tiring, painful and full of multiple every week appointments.
What is my daily life like living with gastroparesis? It’s like playing cards. You have an ace in the hand. You feel like you may win today only to find out that ace is a club to knock you down. Nauseating moments, pain sucking the energy out of you, and being hungry and full at… Read more “Never take for granted what is before you”
What is my daily life like living with gastroparesis? Malnutrition makes it hard to do anything. If I use a little energy today, it takes 3 days to get it back. I’m always tired and feel like I’m wearing a lead blanket.
What is my daily life like living with gastroparesis? Laying in bed looking at 4 walls with a puke bucket beside me along with my medications.. I don’t have a life anymore.. May I add this is a short version…
What is my daily life like living with gastroparesis? Exhaustion, nausea everyday, and vomiting on bad days. Losing friends and feeling like a burden to your family. I have an amazing supportive family, but we still struggle at times as this is such a frustrating disease. Not getting to go outside on beautiful days because… Read more “Exhaustion, nausea everyday, and vomiting on bad days”
What is my daily life like living with gastroparesis? I’m in continuous pain all day long.
What is my daily life like living with gastroparesis? Acceptance is my biggest problem, because I think sometimes I am in denial, but my body continues to remind me that I cant tolerate a lot of food intake, my system doesn’t want to accept fluids so I stay dizzy and dehydrated too much. How could… Read more “Sometimes I am in denial”
What is my daily life like living with gastroparesis? Waking up with the flu and going to bed with the flu. Exhausted, weak, chronic nausea with the inability to puke. Horrible stomach pain. I have no energy and no desire to get out of bed, let alone take care of a house, my family and… Read more “Waking up with the flu and going to bed with the flu”
What is my daily life like living with gastroparesis? For me it is as if I lost all control of my life. I can’t even call it living, it is more like war. Constant pain, nausea, and vomiting. NPO and TPN dependent for 7 years come October. I didn’t only lose the ability to eat,… Read more “I feel more like a burden as days pass”
What is my daily life like living with gastroparesis? Gastroparesis runs my life! I can’t make any plans, can’t eat, bloated, debilitating nausea. Lost 36 pounds in a few months. This disease is horrid!
What is my daily life like living with gastroparesis? I’ve had GP for 14 years 9 months. I’m on disability. After 2 years I was able to go back to work. Only 10-20 hours a week. I wake up tired, nauseous and in pain. I take my meds 6 of them, 2 anti emetics, 2… Read more “Bad days are spent in bed”
What is my daily life like living with gastroparesis? My daughter has GP (now changed to global dysmotility). Some days she does OK, and we might do something. Whatever the something is, it will wear her out. Other days she is bloated and distended, in pain, beyond tired has a headache. Friends her own age… Read more “Good days we grab, and bad days we somehow get through”
What is my daily life like living with gastroparesis? My new normal is not normal. I cannot work. I’m on disability, have been since 2014. I am fed via Jtube about 50% of the time, though that fluctuates with flares. When I can tolerate foods by mouth, they are very limited in quantity, and always… Read more “My new normal is not normal”
What is my daily life like living with gastroparesis? Gastroparesis robs us of so much.
What is my daily life like living with gastroparesis? Daily life is physically challenging for me. Each morning I wake up with lack of energy, unrested from restless sleep IF I had any sleep to start off with, along with nausea & a cramping abdomen from trickling a total of 200mL of pedialyte into my… Read more “Daily life is physically challenging for me”
Gastroparesis: Fighting for Change seeks to unite those with Gastroparesis and other digestive/motility disorders to work for change. It was established as a place where we can discuss ideas regarding our mission, vision, goals, needs, services, and resources and work toward solutions. If you want to make a difference for our GP community, share your ideas, fight for changes in legislation, help raise funds, and/or spread awareness, please join us! We would love to have you!
Step Therapy National Day of Advocacy
Support the Safe Step Act
November 13, 2019
Throughout the day, advocates from around the country will urge their members of Congress to improve patient access by cosponsoring the Safe Step Act, which would establish important protections for patients facing step therapy and fail-first protocols.
Step Therapy and the Safe Step Act
Otherwise known as a “fail first” protocol, step therapy is an insurance practice which mandates that patients try and fail medications preferred by their insurer before they can utilize treatments prescribed by their doctor. While the practice can sometimes be used to contain the costs of prescription drugs, it can also have serious negative impacts on patients, including delayed access to the most effective treatments, severe side effects, and irreversible disease progression.
Step therapy protocols may ignore a patient’s unique circumstances and medical history. That means patients may have to use medications that previously failed to address their medical issue, or – due to their unique medical conditions – could have dangerous side effects.
If left unchecked, the practice can impede the doctor-patient relationship and cause serious harm to patients. The Safe Step Act establishes important safeguards that protect patients when step therapy is mandated by establishing a transparent appeals process and an expedited review for at risk-patients.
The Safe Step Act is a balanced public policy proposal that works to reform step therapy by:
• Establishing a clear exemption process. The bill requires that insurers implement a clear and transparent process for a patient or physician to request an exception to a step therapy protocol.
• Establishing an expedited review for at-risk patients. The bill requires a group health plan to respond to an exemption request within 72 hours in all circumstances, and 24 hours if the patient’s life is at risk.
Please ask your congressional representatives to cosponsor the Safe Step Act (S. 2546 / H.R. 2279).
You can find additional information and read the text of the bill at https://www.congress.gov/bill/116th-congress/house-bill/2279 or https://www.govtrack.us/congress/bills/116/hr2279 and https://www.congress.gov/bill/116th-congress/senate-bill/2546 or https://www.govtrack.us/congress/bills/116/s2546.
You can find contact information for your representatives at https://www.govtrack.us/.
Rep. Ruiz, Raul [D-CA-36]* (original sponsor)
Source: H.R. 2279 – Safe Step Act: https://www.congress.gov/bill/116th-congress/house-bill/2279/cosponsors
Sen. Murkowski, Lisa [R-AK]*(original sponsor)
|Sen. Jones, Doug [D-AL]* (original cosponsor)||09/25/2019|
|Sen. Cassidy, Bill [R-LA]* (original cosponsor)||09/25/2019|
|Sen. Hassan, Margaret Wood [D-NH]* (original cosponsor)||09/25/2019|
|Sen. Hyde-Smith, Cindy [R-MS]* (original cosponsor)||09/25/2019|
|Sen. Rosen, Jacky [D-NV]* (original cosponsor)||09/25/2019|
|Sen. Cramer, Kevin [R-ND]* (original cosponsor)||09/25/2019|
|Sen. King, Angus S., Jr. [I-ME]* (original cosponsor)||09/25/2019|
|Sen. Moran, Jerry [R-KS]||10/16/2019|
|Sen. Sinema, Kyrsten [D-AZ]||10/22/2019|
Source: S. 2546 – Safe Step Act: https://www.congress.gov/bill/116th-congress/senate-bill/2546/cosponsors
My Sister By The Grace of God; Stephanie, is Fighting Gastroparesis Everyday. I know what it’s like fighting a illness/disease. I have a few myself. I Support All Awareness Illnesses and Diseases; Especially those that affect My Loved Ones, and Myself.
For research, effective treatments, education to medical field, awareness, it’s debilitating to live with!! It affects my other issues and has made them worse. There is no cure!!! Diagnosed 2006 and still have no treatment or cure. Getting worse. Uncontrolled diabetes, has caused kidney failure, constant nausea, vomiting and dehydration to name a few. Had… Read more “Dena Shover”
Please help find a cure!!!! Have you ever had the flu? . . . 24/7/365 for 8 years. There are good days and there are weeks or months that seem endless. I’ve lost 70 pounds and in a 24 hour period can fluctuate 10 or more pounds (less or more). My partner Eric and my… Read more “Jana Johnsen”
I would love for you to support this bill as it truly affects me personally as I consider myself to be a Gastroparesis Warrior. I have been sick since September 30, 2018 and was diagnosed on February 6, 2019. This affects my life every day in a multitude of ways. I have missed 63 days… Read more “Desiree LaFontaine”
I have had type 1 diabetes since I was 13, I am now 45. GP is a concern. I also lost a very dear friend to idiopathic GP she fought this disease for 20 years. The horrific pain and nausea were just some of the things she endured. Her and so many others deserve to… Read more “Stacy Wellinger”
I have had Gastroparesis since I was born, every day is a challenge just to survive. I suffer from nausea, vomiting, bloating, have had multiple test done, surgeries including gastric stimulator which did not work for me. There is currently no cure for Gastroparesis we need awareness and funding for research. Please support this bill.… Read more “Amber Simon”
The digestive tract is just as important to the body as the heart.
I have this disorder so does my Mom I don’t get any treatment for it and it has made my life hell. I have GERD, IBS-D and many food allergies and intolerance and I seem to only get more. I’m 40 and wear depends because I fear leaving the house without them. I’m nauseous everyday… Read more “Shannon Price”
I was diagnosed with GP Aug 2,2017 resulting from a botched procedure in October 2015 due to bleeding ulcers. I am in constant pain and am nauseous all the time. I have lost over 85lbs & still losing. I am slowly & painfully starving to death. This disease not only affects me but my whole… Read more “Leslie Kimbrell”
We are literally starving to death, treated horribly by doctors and labeled as drug seekers when we come into the ER for flare-ups. As a diabetic my sugar gets processed too fast or not fast enough, making it very danger for diabetics. Symptoms are barely treated and we’re tired of hurting and being nauseous, and… Read more “Heather Hughes”
I was diagnosed with gastroparesis about 8 years ago. There has been little help offered from various doctors at various hospitals. There is not enough education on this disease and not a lot of professionals looking for answers. I get almost all of my support from others with the disease. Doctors have offered little as… Read more “Cristina Gibson”
My mother (Dena Shover) lives with gastroparesis and I HATE to see her suffer from this debilitating disease. Nobody should have to suffer from this. This bill needs to be passed so there is more awareness, funding and hopefully a cure.
My story began about 8 years ago. I was overweight 185 and feeling sick. I got onto a serious health kick lost a few pounds but in the process I kept getting sicker. Who knew that the fruits and vegetables I was eating were making me sicker. Having gastroparesis is like losing your identity. Trying… Read more “Benita (Bennie) Price”
I was diagnosed with Gastroparesis, GERD, esophageal dysmotility, and intestinal dysmotility. My doctors believe these disorders are the result of an autoimmune disease. I have tried all of the available treatments and nothing has helped. My options are limited and my quality of life has significantly decreased. I was a high performing public school principal… Read more “Jacquelyn Wilhelm”
I have gastroparesis. There is no cure. I am exhausted all the time. I am deeply saddened by people dying every day from this illness. We need a cure!
I know someone suffering from this illness. Funds and research is definitely needed.
My nine-year-old son was diagnosed with gastroparesis this year. He has struggled with symptoms since he was four. We have visited multiple doctors from different specialized fields over these four years trying to figure out why he continued to suffer from extreme stomachaches, constant nausea, malnutrition, losing weight, food intolerances, and constant fatigue. He has… Read more “Debbie Riney”
I have gastroparesis and it’s very debilitating and even more aggravating when your doctor doesn’t know how to treat the disease.
I was diagnosed with Gastroparesis five years ago. However I have had gastrointestinal issues for 15 years. Gastroparesis has affected my life tremendously. I am no longer able to work and have a normal life. I stay malnourished, dehydrated, nauseous, and in a lot of pain. Two years ago the doctor placed a gastric stimulator… Read more “Stephanie Reffitt”
I have suffered from diabetic gastroparesis for a decade. I’ve almost lost my life several times and I’m only 31. I’m hospitalized roughly every four weeks for motility related illness. Everything from sepsis to diabetic ketoacidosis. Here’s the kicker, mines not even close to how bad some get. If this isn’t done for adults, then… Read more “Shauna Cooper”
To end the suffering people having dealing with the disease and the financial hardships they face also.
I have been dealing with Gastroparesis for 6 years, it has been the biggest struggle of my life. Please support HR 3396 to help me and everyone else living with disease have hope for our future.
I am a 38 year old man with idiopathic gastroparesis. I am on a GJ feeding tube and down from 250 lbs to 120 lbs. They still have no idea what’s causing this in me and insurance and regulations lock up diagnostic and treatment options along with not helping with tube formula. This is completely… Read more “Jesse Nuckolls”
About 10 years ago, Gastroparesis began affecting my sisters life. As a wife, mother and teacher, her life has been changed in every way. I cannot even begin to describe her journey, but she sure can. She can name every medicine, procedure, complication, and more of her own personal experience because she has traveled the… Read more “Karen Lewis”
I would love for this bill to be supported because I am someone who lives with gastroparesis. The lack of treatments, and having no cure isn’t acceptable. We need to do more for the gastroparesis community. Please, please help us! We need you!!
It’s time for the suffering to stop! This disease and the people that are fighting it , deserve as much attention and funding for research as Crohn’s, IBS & plenty of others gets.
After watching my beautiful granddaughter Marissa fall victim to this terrible debilitating disease, it stole her hopes and dreams .She graduated from high school full of hopes and dreams. She joined the Navy and was to report to the school for nuclear engineering to train for duty on a submarine. This thing struck her down… Read more “Dorothy Burkhart”
I am a type one diabetic and I also suffer from chronic gastroparesis. My life is not easy but I do the best I can. A huge factor I’ve noticed that is negatively affecting the gastroparesis community is the fact that very few people know about this chronic and debilitating disease. Please help us inform… Read more “Amber Jones”
I suffer with this horrific disease that I would not wish on anyone. Not many treatments and not enough Dr’s who truly understand the disease and how to help their patients.
I’m new to this disorder but am suffering so badly I can’t work and a fear losing my job and insurance. Please help us.
I would like this bill to be supported because like many others, my life matters. I am a mother of 4 beautiful children that is part of our future. I was making my way towards teaching our future and after waking one night extremely ill, it was all taken away from me, my children, and… Read more “Monica Slaughter”
I have been suffering with Gastroparesis and swallowing issues for a year now and can’t believe that the treatments are so limited. The medicine that’s out there is so dangerous and make things worse with horrible side effects. We need more we need a cure!!!
Gastroparesis is a debilitating disease. Just when you think you are on the right track and doing better you get knocked back down again. When I eat it feels like I am eating shards of glass, or that someone has their fingers dug on either side of my rib cage pulling as hard as they… Read more “Melissa McClure”
I’m writing this in hopes to help bring awareness and hopefully a cure to a horrible disease called gastroparesis. My beautiful daughter,Marni, suffered from GP for almost 10 years before she passed away from the complications it causes. Having GP is worse than having the flu each and every day of your life. My daughter… Read more “Robyn Herskowitz”
My daughter in law suffers from this horrific and debilitating disease. Presently we don’t have an effective treatment or cure due to lack of research and awareness of this disease. I support this bill 100% . It is very critical and important that further research and financial assistance is made available to improve awareness of… Read more “Dalia Castillo”
The idea that anyone would have to live with this condition is heartbreaking. Living with a feeding tube, removal of gall bladder and surviving on a mere 500-600 calories a day, my aunt has been more than a trooper. We owe it to those with gastroparesis to do something about it!
Please support H. R. 3396, the Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019, which was introduced in the House Energy & Commerce Committee by Rep. James F. Sensenbrenner, Jr. (R-WI), on June 20, 2019. This bill would expand research, increase funding, and promote awareness and understanding of devastating functional gastrointestinal and motility disorders which greatly impact the lives of millions of sufferers.
These disorders, which include gastroparesis, Irritable Bowel Syndrome, dysphagia, dyspepsia, GERD, Cyclic Vomiting Syndrome, Chronic Intestinal Pseudo-Obstruction, and numerous other digestive tract disorders and diseases, are truly life-altering, commonly debilitating or life-threatening, and often have few (or no) safe, reliable, and effective treatments or cures. Available treatment options are frequently accompanied by serious side effects and risks as well. The millions who suffer from FGIMDs deserve awareness and expanded educational efforts on their behalf, increased research funding, and better, more effective treatments or cures.
A brief summary of the Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019 as established by the Library of Congress reads as follows:
“This bill amends the Public Health Service Act to require the National Institutes of Health to expand, intensify, and coordinate its activities with respect to functional gastrointestinal and motility disorders (FGIMDs), including by:
- expanding basic and clinical research into FGIMDs by implementing the research recommendations of the National Commission on Digestive Diseases,
- providing support for the establishment of centers of excellence on FGIMDs,
- supporting innovative approaches to educating health care providers and patients regarding strategies that improve patient-provider relationships and care,
- directing the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to provide the necessary funding for the continued expansion and advancement of the FGIMDs research portfolio, and
- directing NIDDK and the Eunice Kennedy Shriver National Institute of Child Health and Human Development to expand research into FGIMDs that impact children.
The Department of Health and Human Services may engage in public awareness and education activities to increase understanding and recognition of FGIMDs.”
Please ask your congressional representative to expand research, increase funding, and promote awareness of functional gastrointestinal and motility disorders by supporting H. R. 3396. You can find additional information and read the text of the bill at https://www.congress.gov/bill/116th-congress/house-bill/3396 or https://www.govtrack.us/congress/bills/116/hr3396. You can find contact information for your representatives at https://www.govtrack.us/.
Thank you for your consideration!
*Please note: This bill was formerly known as H. R. 2239, H. R. 842, H. R. 2311, and H.R. 1187. All four bills died in previous congressional sessions; H. R. 3396 is the current (116th Congress) reintroduction. It is essentially a new bill and must begin the entire process again if it is to be passed. At the time of this writing, this bill had only 6 cosponsors, and we desperately need additional support. Skopos Labs, a data analysis company which evaluates congressional bills, has given H. R. 3396 only a 5% chance of enactment. This bill must pass out of committee, be approved by both the House and Senate in identical form, and be signed by the president by January 3, 2021, to be enacted as law. If it fails at any point in the process, it must be reintroduced in the next congressional session and begin its journey again. The bill gains support with each reintroduction, but we need advocates to contact their representatives and encourage them to cosponsor the bill in order to make significant progress toward enactment.
“H.R. 3396 — 116th Congress: Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019.” www.GovTrack.us. 2019. July 3, 2019. https://www.govtrack.us/congress/bills/116/hr3396
“H.R.3396 - 116th Congress (2019-2021): Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019.” Congress.gov | Library of Congress - https://www.congress.gov/bill/116th-congress/house-bill/3396/all-info
Rep. Sensenbrenner, F. James, Jr. [R-WI-5]* (original sponsor)
|Rep. Moore, Gwen [D-WI-4]*(original cosponsor)||06/20/2019|
|Rep. Fitzpatrick, Brian K. [R-PA-1]||06/27/2019|
|Rep. Price, David E. [D-NC-4]||06/27/2019|
|Rep. Pocan, Mark [D-WI-2]||07/11/2019|
|Rep. Perlmutter, Ed [D-CO-7]||07/18/2019|
|Rep. Neguse, Joe [D-CO-2]||07/24/2019|
|Rep. Kind, Ron [D-WI-3]||07/30/2019|
|Rep. Porter, Katie [D-CA-45]||09/11/2019|
|Rep. Massie, Thomas [R-KY-4]||09/11/2019|
|Rep. Rose, Max [D-NY-11]||09/11/2019|
|Rep. Gosar, Paul A. [R-AZ-4]||09/20/2019|
|Rep. Loebsack, David [D-IA-2]||09/25/2019|
|Rep. Vela, Filemon [D-TX-34]||10/28/2019|
|Rep. Lee, Susie [D-NV-3]||10/28/2019|
Source: “H.R. 3396 — 116th Congress: Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019.” www.GovTrack.us. 2019. October 26, 2019. https://www.congress.gov/bill/116th-congress/house-bill/3396/cosponsors