A basic catch 22

What is my daily life like living with gastroparesis? Pain, nausea, vomiting, diarrhea and or constipation, malnourished, headaches, body hurts, fatigue, muscle cramps, blood sugar bottoms out, hair breaks off… Read more “A basic catch 22”

Too scared to eat

What is my daily life like living with gastroparesis? Too scared to eat at times, painful bloating, no energy. My every other day life since being… Read more “Too scared to eat”

Exhausted and dehydrated daily

What is my daily life like living with gastroparesis? Pain every day. Nausea if I eat.. Nausea if I don’t. Exhausted and dehydrated… Read more “Exhausted and dehydrated daily”

Living life with Gastroparesis is a guessing game

What is my daily life like living with gastroparesis? A guessing game, can be vastly different from day to day, week to week. Very difficult to plan anything or work… Read more “Living life with Gastroparesis is a guessing game”

Trying to keep nausea and acid reflux under control

What is my daily life like living with gastroparesis? My daily life is trying to keep nausea and acid reflux under control so I’m able to eat small amounts of… Read more “Trying to keep nausea and acid reflux under control”

Continuous pain

What is my daily life like living with gastroparesis? I’m in continuous pain all day… Read more “Continuous pain”

Simply exhausted

What is my daily life like living with gastroparesis? Simply exhausted from this disease. You never know when you’re going to have a good day… Read more “Simply exhausted”

Tiring and painful

What is my daily life like living with gastroparesis? Tiring, painful and full of multiple every week… Read more “Tiring and painful”

Never making plans without a contingency plan

What is my daily life like living with gastroparesis? I spend a majority of my days in bed, eating what I can because I have to, not because I am… Read more “Never making plans without a contingency plan”

Daily life is physically challenging for me

What is my daily life like living with gastroparesis? Daily life is physically challenging for me. Each morning I wake up with lack of energy, unrested from restless sleep IF… Read more “Daily life is physically challenging for me”

Sometimes I am in denial

What is my daily life like living with gastroparesis? Acceptance is my biggest problem, because I think sometimes I am in denial, but my body continues to remind me that… Read more “Sometimes I am in denial”

Exhaustion, nausea everyday, and vomiting on bad days

What is my daily life like living with gastroparesis? Exhaustion, nausea everyday, and vomiting on bad days. Losing friends and feeling like a burden to your family. I have an… Read more “Exhaustion, nausea everyday, and vomiting on bad days”

I feel more like a burden as days pass

What is my daily life like living with gastroparesis? For me it is as if I lost all control of my life. I can’t even call it living, it is… Read more “I feel more like a burden as days pass”

Bad days are spent in bed

What is my daily life like living with gastroparesis? I’ve had GP for 14 years 9 months. I’m on disability. After 2 years I was able to go back to… Read more “Bad days are spent in bed”

It’s Hard To Make Plans

What is my daily life like living with gastroparesis? I have anxiety, depression, fatigue, muscle cramps, pain, nausea, diarrhea, & I never know what my day to day will be… Read more “It’s Hard To Make Plans”

Food is terrifying

What is my daily life like living with gastroparesis? I wake up each day to nausea. Food is terrifying. Malnutrition is even more terrifying. We are battling our own bodies… Read more “Food is terrifying”

Nausea and fatigue are a constant

What is my daily life like living with gastroparesis? Nausea and fatigue are a constant, pain is a surprise every day..never know when or how… Read more “Nausea and fatigue are a constant”

Alone about 90% of the time

What is my daily life like living with gastroparesis? I’m now alone about 90% of the time. No one including my family bothers with me because I’m “sick”. I’m nauseous… Read more “Alone about 90% of the time”

Like being locked in a prison

What is my daily life like living with gastroparesis? GP is like being locked in a prison with no… Read more “Like being locked in a prison”

This disease has weakened me

What is my daily life like living with gastroparesis? Too limited my Life by Tiredness, weakness from Nausea, Vomiting and pain. This disease has weakened me, and damaged other organs.… Read more “This disease has weakened me”

I have to take my day minute by minute

What is my daily life like living with gastroparesis? I have to take my day minute by minute. It begins every morning with being woken up by nausea. Then the… Read more “I have to take my day minute by minute”

The smell of food cooking makes me sick

What is my daily life like living with gastroparesis? NO LIFE! I did enjoy flower gardening just too hard to keep them up now with the nausea 24 hours a… Read more “The smell of food cooking makes me sick”

I never know if it’s going to be a good day or a bad day

What is my daily life like living with gastroparesis? I never know if it’s going to be a good day or a bad day. I do all the right things… Read more “I never know if it’s going to be a good day or a bad day”

Living in debilitating pain

What is my daily life like living with gastroparesis? Living in debilitating pain along with feeling nauseated all day. As well as the littlest things you do wears you down… Read more “Living in debilitating pain”

Never take for granted what is before you

What is my daily life like living with gastroparesis? It’s like playing cards. You have an ace in the hand. You feel like you may win today only to find… Read more “Never take for granted what is before you”

I don’t have a life anymore

What is my daily life like living with gastroparesis? Laying in bed looking at 4 walls with a puke bucket beside me along with my medications.. I don’t have a… Read more “I don’t have a life anymore”

It’s like getting severely sick and never getting better

What is my daily life like living with gastroparesis? It’s like getting severely sick and never getting better. I wake up nauseous and go to bed nauseous, constant pain –… Read more “It’s like getting severely sick and never getting better”

Good days we grab, and bad days we somehow get through

What is my daily life like living with gastroparesis? My daughter has GP (now changed to global dysmotility). Some days she does OK, and we might do something. Whatever the… Read more “Good days we grab, and bad days we somehow get through”

Gastroparesis runs my life

What is my daily life like living with gastroparesis? Gastroparesis runs my life! I can’t make any plans, can’t eat, bloated, debilitating nausea. Lost 36 pounds in a few months.… Read more “Gastroparesis runs my life”

My new normal is not normal

What is my daily life like living with gastroparesis? My new normal is not normal. I cannot work. I’m on disability, have been since 2014. I am fed via Jtube… Read more “My new normal is not normal”

Severe waves of nausea

What is my daily life like living with gastroparesis? I’m on disability at the age of 36. Couldn’t even get regular SSDI because I never accrued enough work credits. I’m… Read more “Severe waves of nausea”

The constant fear and worry never stops

What is my daily life like living with gastroparesis? I don’t have GP myself but, as the parent of a daughter with GP I can say this: every day is… Read more “The constant fear and worry never stops”

Sick like I have to throw up all day

What is my daily life like living with gastroparesis? I always have nausea, abdominal pain and sick like I have to throw up all day. I force 1/2 a cup… Read more “Sick like I have to throw up all day”

Nauseous but hungry at the same time

What is my daily life like living with gastroparesis? Nauseous but hungry at the same time is awful. But a flareup is even worse! I don’t have a lot of… Read more “Nauseous but hungry at the same time”

Nausea, extreme fatigue, stomach pain and swelling

What is my daily life like living with gastroparesis? Nausea, extreme fatigue, stomach pain and swelling, side effects from meds including dizziness, drowsiness, blurred vision, memory loss. With all this,… Read more “Nausea, extreme fatigue, stomach pain and swelling”

I miss my old life

What is my daily life like living with gastroparesis? I wake up usually in pain ..Its like being stabbed in my stomach ..I’m always weak from Malnutrition issues..I drink my… Read more “I miss my old life”

Nauseated from a smell

What is my daily life like living with gastroparesis? Never knowing if I’m going to just be nauseated from a smell, just trying to eat (if I even get hungry),… Read more “Nauseated from a smell”

You don’t know what to expect next

What is my daily life like living with gastroparesis? Constantly in pain, bloated, nauseous, so weak everyday is a challenge. Doctor’s don’t understand you they think it’s all in your… Read more “You don’t know what to expect next”

Gastroparesis robs us

What is my daily life like living with gastroparesis? Gastroparesis robs us of so… Read more “Gastroparesis robs us”

I never know what the day will bring

What is my daily life like living with gastroparesis? My daily life is me laying on the couch or bed, stinking from not having the energy to shower. Taking all… Read more “I never know what the day will bring”

A never ending battle within my own body

What is my daily life like living with gastroparesis? It’s like a never ending battle within my own body! My family worries all the time! Smelling, seeing and even the… Read more “A never ending battle within my own body”

Waking up with the flu and going to bed with the flu

What is my daily life like living with gastroparesis? Waking up with the flu and going to bed with the flu. Exhausted, weak, chronic nausea with the inability to puke.… Read more “Waking up with the flu and going to bed with the flu”

Every day is different and unpredictable

What is my daily life like living with gastroparesis? Every day is different and unpredictable. Today may have been a decent day and I left the house. Tomorrow, I may… Read more “Every day is different and unpredictable”

It’s like living on a roller coaster

What is my daily life like living with gastroparesis? It’s like living on a roller coaster with no end in sight. And one that has so many twists and turns… Read more “It’s like living on a roller coaster”

Malnutrition makes it hard to do anything

What is my daily life like living with gastroparesis? Malnutrition makes it hard to do anything. If I use a little energy today, it takes 3 days to get it… Read more “Malnutrition makes it hard to do anything”

Every day is an adventure

What is my daily life like living with gastroparesis? Every day is an adventure because I never know how I will… Read more “Every day is an adventure”

Lots of planning around food

What is my daily life like living with gastroparesis? Lots of planning around food, especially if I’m going out for the day or traveling. I hate getting sick away from… Read more “Lots of planning around food”

I went from working to being worn out

What is my daily life like living with gastroparesis? My daily life went from working my tail off 7 days/week to suddenly no energy. No nothing. Just sick. At that… Read more “I went from working to being worn out”

Gastroparesis: Fighting for Change seeks to empower the gastroparesis community by providing information and education, hosting support groups and programs, and leading awareness and advocacy efforts.  We seek to unite those with gastroparesis to discuss our vision, goals, needs, services, and resources and endeavor to make a difference for our GP community by educating patients, providers, legislators, researchers, and the general public; spreading awareness of our disease; pursuing beneficial changes in legislation and policies; engaging in fundraising efforts; supporting new treatment options and research; and working toward solutions to our most pressing issues.