Bad days are spent in bed

What is my daily life like living with gastroparesis?

I’ve had GP for 14 years 9 months. I’m on disability. After 2 years I was able to go back to work. Only 10-20 hours a week. I wake up tired, nauseous and in pain. I take my meds 6 of them, 2 anti emetics, 2 pain meds for my neuropathy, 1 for GERD, 1 for my anxiety and 1 dilaudid. I also take a few hits of my medical marijuana. I change my jtube dressing and take my blood sugar. I usually go in to work between 11 and Noon. I don’t set an alarm unless I’m driving a resident to an appt. I love my job. I am an LPN at an assisted living home. I mostly do paperwork like making sure all the charts are together and purged and accurate. I complete forms and contact physicians offices. I get to spend my days with some of the best humans on the face of the earth. They are the reason I get out of bed.

I also get my grands once a week. At the end of my day, oh yeah, I cannot eat all day if I’m working because I leak around my jtube. So, Mondays I go to my psychologist. When I get home I go lay down and hope the pain softens. My hubby John cooks us dinner. I spend the evenings watching TV. That’s a good day. Bad days are spent in bed with my vape pen and use a lot medical marijuana. I take meds for my neuropathy and anxiety in the afternoon. At bedtime I take the meds as in the morning plus 1 for my diabetes, 2 for cholesterol, 1 for allergies, 1 for my blood pressure, 1 for my rapid pulse, 1 for depression/nausea, change my fentanyl patches and my scopalimine patch. I would love to do normal stuff but I can’t. I have to work to Medicaid. With 10 specialists I cannot afford the $50 copays. I only hope I can continue to work. GP changed my life so much. My stomachs name is Harvey. I named him back in 2005 so that when I’m having a bad flare I have someone to yell at! 😁😉💚

loading spinner
Print Friendly, PDF & Email