What is my daily life like living with gastroparesis?
My new normal is not normal. I cannot work. I’m on disability, have been since 2014. I am fed via Jtube about 50% of the time, though that fluctuates with flares. When I can tolerate foods by mouth, they are very limited in quantity, and always very bland. Most of my time is spent in bed due to fatigue, pain, lack of sleep, and generally feeling unwell. I’m always in pain. I don’t vomit since I have the gastric stimulator, but still often have nausea, though not as severe as before getting the stimulator. I get migraines almost everyday due to lack of sleep from being in pain all the time. It never ends.