Virtual Advocacy Day

Virtual Advocacy Day

When: July 23, 2019

Where: Anywhere in the US

Purpose: Support HR 3396

As a follow-up to our DC rally & IFFGD Hill Day, the #Gastroparesiscommunity will be hosting a VIRTUAL ADVOCACY DAY on July 23, 2019, in support of H.R. 3396. Please join us as we stand up, speak out, & demand change!

Additional information below and at https://melissarvh.blogspot.com/…/07/virtual-advocacy-day.h…

 

#DCGreen2019 #CureGP

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This July 23, 2019, the Gastroparesis community invites you to support the millions of patients and their loved ones affected by Functional Gastrointestinal and Motility Disorders.

These disorders, which include Gastroparesis, Irritable Bowel Syndrome, Dyspepsia, GERD, and numerous other conditions, are frequently debilitating, and sometimes life-threatening, and they impact the physical, mental, emotional, social, and financial well-being of those affected. FGIMDs are chronic illnesses which impact people of all ages, genders, races, and socioeconomic backgrounds; yet there are often few (or no) effective treatments or cures, and the limited available treatment options come with serious side effects and risks.

Please contact your congressional representatives in the House and request that they cosponsor the Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019 (H.R. 3396) and ask your senators to introduce a companion bill.

This nonpartisan, budget-neutral legislation would promote awareness and expand educational efforts on our behalf and direct much-needed research funds to our communities so that we might finally be granted better, more effective treatments or cures. You can find the text of the bill at https://www.congress.gov/bill/116th-congress/house-bill/3396

 

You may call, write, or e-mail your representatives. You can find the names and contact information of your representatives at https://www.govtrack.us/congress/members

 

 

Please consider the following talking points when contacting your representatives:

  • Identify yourself as a constituent and be direct about the purpose of your call/letter/e-mail. Ask to speak with the representative’s healthcare advisor if possible.
  • Mention the bill by name and/or number and let your representatives know its purpose.
  • Briefly tell your personal story.
  • Mention that FGIMDs affect millions of patients and their loved ones.
  • Explain that the bill would direct potentially life-saving research funds to these communities in the hopes of finding effective treatments and cures and create “Centers of Excellence” designed to educate and promote awareness of these devastating illnesses.
  • Point out that the legislation is budget-neutral (or does not incur additional costs or deficits).
  • Thank your representative for his/her time and consideration and make certain you have left your contact information in case you can provide additional input.

If your representative would like to pursue co-sponsorship, you can direct your representative to contact Mr. Ben Steinhafel, in Rep. James Sensenbrenner’s office, at ben.steinhafel@mail.house.gov and/or Ms. Carol Frauman, in Rep. Gwen Moore’s office, at caroline.frauman@mail.house.gov.

 

THANK YOU SO MUCH FOR LIFTING YOUR VOICES!

 

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About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

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