Gastroparesis: Fighting For Change > Support H.R. 3396 > Ruth Hufford

Ruth Hufford

Posted on August 30, 2019December 8, 2019 by Gastroparesis: Fighting For Change

A good friend of mine has been afflicted with gastroparesis so I know what pain and suffering she has gone through. Since there is no cure at this time, I’d like to strongly support this research.

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Gastroparesis: Fighting for Change

06/14/26

"Sham feeding is consistently abnormal in patients with predominant symptoms of nausea and vomiting, while the correlation between the gastric scintigraphy result and gastroparesis symptoms was not significant. Sham feeding may be a valuable test when assessing patients with symptoms of nausea and vomiting."
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Assessment of Vagus Nerve Injury Through Sham Feeding – Digestive Diseases and Sciences

link.springer.com

Background Vagal nerve injury can cause nonspecific symptoms and is challenging to assess. Pancreatic polypeptide (PP) release after sham feeding is a surrogate marker of vagal function. This study ev…

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Gastroparesis: Fighting for Change

06/14/26

A couple of points related to the current state of affairs in the GP community (followed and highlighted by excerpts of the study below):1. Dietary changes are the first recommendation given to patients. Why do we not have clinical studies supporting the guidelines given to patients, when 64% are not meeting their energy needs?2. Why are we still talking about ARFID in relation to GP? Given that 77% of the study population screens positive for this, it may be worth considering a different perspective or alternative measurements for this population. Food avoidance or restriction is a rational defense mechanism. If I eat a food 50 times, and all 50 times it causes me nausea and pain, I am not eating it again. Even rats learn, and I am at least as smart as a rat. Fix my GP, and you solve my eating issues. I don’t need psychological intervention.Highlights from the article:"#Gastroparesis can result in significant nutritional challenges and impairments to quality of life. Inadequate nutrition intake is common, with an estimated 64% of individuals not meeting energy requirements…Importantly, due to symptom association with oral intake, disordered eating risk is increased in gastroparesis, with a survey indicating 77% of adults with gastroparesis screened positive for avoidant restrictive food intake disorder (ARFID)…The current state of clinical practice using diet for gastroparesis is more based on physiological principles than clinical studies. Patients with gastroparesis are commonly advised to follow a diet low in fat and dietary fiber, replace solids with liquids, and consume smaller, more frequent meals. In surveys of patients with gastroparesis, ‘figuring out what to eat’ and ‘managing symptoms’ ranked highest in aspects of living with gastroparesis that caused the most difficulty…While clinical data are lacking to guide dietary therapies in gastroparesis, current best practices include modifying fiber based on form and particle size, consuming smaller, more frequent meals, reducing dietary fat or modifying form of fat (e.g., liquid), replacing solid foods with liquids where indicated, and sitting upright or engaging in gentle movement after mealtime. Further studies are needed to better characterize the global patterns of dietary needs in gastroparesis, as well as to inform strategies to further individualize diet based on etiology, severity, and symptom presentation."pmc.ncbi.nlm.nih.gov/articles/PMC10842788/www.mdpi.com/2072-6643/18/11/1787#CureGP
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Dietary Therapies for Gastrointestinal Disorders

www.mdpi.com

Alterations in gastrointestinal function (digestion, absorption, motility, secretion, and elimination) play important roles in the pathophysiology of many gastrointestinal disorders. Food also strongl…

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Gastroparesis: Fighting for Change
updated their status.

06/08/26

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Gastroparesis: Fighting for Change

05/25/26

#MemorialDay
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Gastroparesis: Fighting for Change

05/21/26

I know first-hand the life-altering nature of this illness and the burden of finding effective treatments. I witness countless others who share this burden in my online support groups as well. The FDA must address the urgent needs of patients, permit them a voice in policy-making, and truly embrace a patient-centered approach.You can help bring about positive change by signing our petition!c.org/qjYQxQHH4p#gastroparesis #CureGP
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Sign the Petition

c.org

Create an Office of the Patient Advocate within the FDA

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