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Gastroparesis: Fighting for Change, Advocating for a Cure
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  • GASTROPARESIS AWARENESS MONTH 2023 GIVEAWAY !
  • Gastroparesis 2023 Awareness Campaign – #GPFullLife4Me
  • GASTROPARESIS AWARENESS MONTH 2022 GIVEAWAY 2!
  • GASTROPARESIS AWARENESS MONTH 2022 GIVEAWAY!
  • Kelly Sharp

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Gastroparesis: Fighting for Change

08/31/26

Gastroparesis: Fighting for Change

As we close Gastroparesis Awareness Month, please remember that August is not the end of our struggle for understanding, proper care, better treatments, and cures. Stand up, speak out, and demand better!Many thanks to everyone for your support!#gastroparesis #CureGP #gpchangemakers

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Gastroparesis: Fighting for Change

08/29/26

Gastroparesis: Fighting for Change

We have organized a "Demand Recognition" campaign a couple of times over the past few years. As some of you may recall, as part of our ongoing mission to shed light on #Gastroparesis and establish competent and compassionate care for all patients, we created information packets that were sent via postal service and e-mail to several relevant medical associations, organizations, schools, clinics, and policymakers.These packets included a personal introductory letter detailing our current situation, a list of “demands” designed to address the most pressing needs in our community, survey results indicating the extent of our need, and numerous patient stories designed to enlighten them on our plight.Additionally, we made an online form available (with a signature line) that listed these demands, allowing anyone who wished to participate to print and send the letter. We also created, printed, and sent to community members, upon request, free "rack cards" and brochures (with the same information) suitable for mailing or drop-off.Despite our best efforts, participation was low, and the campaign fell short of our expectations. We received a few kind responses (notably from the FDA and the ANMS), but it would be inaccurate to say the campaign led to meaningful changes. It is difficult to understand why participation and response rates were not higher. In the future, if we were to try again, we would likely list the same demands but ask for more specific actions on the part of the organizations and parties we contacted. Our reach on social media is limited, and that likely hampered our efforts as well. Future campaigns are not out of the question, but we would need mass participation and buy-in to achieve the impact we desire.We can only hope that our previous campaigns at least touched the hearts of the individuals who received our packets, and that, one day, the changes we seek will come to fruition.We urge everyone affected by Gastroparesis and everyone responsible for providing and improving care to step up and be the #GPChangemakers we desperately need.#CureGP

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Gastroparesis: Fighting for Change
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08/29/26

Gastroparesis: Fighting for Change
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Gastroparesis: Fighting for Change
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08/28/26

Gastroparesis: Fighting for Change

Tahlequah, OK

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Gastroparesis: Fighting for Change

08/28/26

Gastroparesis: Fighting for Change

Gastroparesis Awareness Month Proclamation 2026: Tahlequah, OklahomaCongratulations and many thanks to Ms. Amber Simon!

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Gastroparesis: Fighting for Change

08/27/26

Gastroparesis: Fighting for Change

Such a beautiful presentation of the issues #gastroparesis patients often encounter, with genuinely helpful potential solutions and a pathway toward improvements. Why has this approach not been adopted at every point of care?www.thehealthcareexecutive.net/health-observance-calendar/gastroparesis-awareness-month-2026/#CureGP #gpchangemakers

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Gastroparesis Awareness Month 2026 | Executive Brief

www.thehealthcareexecutive.net

Gastroparesis Awareness Month 2026: an executive guide to access, ownership, handoffs, practical measures, and a focused 90-day improvement plan.

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Gastroparesis: Fighting for Change

08/26/26

Gastroparesis: Fighting for Change

Reminder: Today!

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Gastroparesis: Fighting for Change

08/25/26

Gastroparesis: Fighting for Change

Reminder: Today!

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Gastroparesis: Fighting for Change
updated their status.

08/25/26

Gastroparesis: Fighting for Change
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Gastroparesis: Fighting for Change
updated their status.

08/25/26

Gastroparesis: Fighting for Change
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Copyright by Gastroparesis: Fighting For Change, LLC in 2019

P.O. Box 712, Morrisville, PA 19067

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