#Gastroparesis #CureGPYou can still register for our chat with the authors of "Gut Feelings: Disorders of Gut-Brain Interaction and the Patient-Doctor Relationship" that is happening tomorrow! But don’t miss out, registration closes today! bit.ly/3tc0RAF
Thank you to @CommonwealthDX for supporting our efforts. … See MoreSee Less
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REMINDER: TODAY!
Please join us on Tuesday, February 23, at 11:00 AM EST.
This meeting is free, but you must pre-register at conta.cc/3pr0EGn
Once you have registered, you will receive an e-mail with call-in instructions. You can join via telephone or web.
#gastroparesis #CureGP … See MoreSee Less
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Please join us on Tuesday, February 23, at 11:00 AM EST.
This meeting is free, but you must pre-register at conta.cc/3pr0EGn.
Once you have registered, you will receive an e-mail with call-in instructions. You can join via telephone or web.
#gastroparesis #CureGPDon’t miss our new AGMD series featuring Dr. Kenneth Koch! This month we will talk about the vagus nerve, fundoplication and post-surgical gastroparesis. Register today! conta.cc/3pr0EGn … See MoreSee Less
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Happy Valentine’s Day! A poem for you all…
WHAT YOU MEAN TO ME
Joy and heartache, triumph and despair,
Hard-fought battles and arduous trials,
No matter the tests or tribulations that come,
We face them all together, side-by-side.
Your gentleness and true affection,
Understanding and thoughtfulness,
Touch my once-callous heart, my troubled soul,
Leave me thankful, deeply humbled, profoundly blessed.
Though burdened with hardship and ailment,
My life still has purpose and meaning,
For I have found in you beautiful people,
A reason to try, to aspire, keep believing.
I have hope that we can usher in change,
That together, we can all make a difference,
That the world will open its blind, passive eyes,
And we will then see our splendid deliverance.
That the deaf will soon hear our passionate pleas,
For mercy, tenderness, and human kindness,
That we will promptly have a cure, or a measure of relief,
So we can rise – and leave this cruel illness behind us.
You are forever in my thoughts and my prayers,
Such precious, treasured, priceless souls,
My friends, my focus, my fondness, my devotion,
Worthy of effort, deserving of a voice.
So, I offer you my undying love song,
Pale and inadequate though it may be,
That you might know you are valued and cherished,
And understand how much you all mean to me.
melissarvh.blogspot.com/2021/02/what-you-mean-to-me.html
#CureGP #gastroparesis … See MoreSee Less
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Calandra Rubin
Posted 02/06/21
Since a dedicated effort to healing myself began at the new year, so much has changed. I still don’t feel well, but I’m gathering strength from knowing I am working hard on my goal of returning to teaching next fall.
*I eat! For the past month, I have consistently eaten 3-6 small meals a day. The dietician at Mayo really was helpful at helping me create an eating plan I could achieve!
*Weekly infusions have been great! I finished my iron, and have 5 more weeks of hydration.
*I take a ridiculous amount of medication and supplements now. I could open my own pharmacy. Currently I’m at 17 pills, 1 injection, and 3 gummy vitamins a day.
*Two surgeries are in the works. One has been approved (G-Poem) and is waiting on Covid to settle down. The other needs more testing to see if they can do two things at one time (hysterectomy and mommy bladder fix.)
*Finally got the call from neurology at Mayo to further investigate and treat my POTS.
*I still am really struggling with sleep and my heart rate. The botox has worn off and nausea has been a daily visitor again.
I know I’m doing better, but I am constantly struggling with a burning stomach. I am on Pepcid, Allegra, and Pantoprazole twice a day. I also take carafate and Mylanta. For emergencies, I have GI cocktails. Home remedies like baking soda, apple cider vinegar,, etc… have been tried. None of these meds are working. I’m literally doing EVERYTHING my army of doctors can do. I’m at a loss.
Thanks for reading. 😊 … See MoreSee Less
