First off, seems like most ERs we have been to do not even know what GP is.
2nd off, seems like if you are vomiting worse than usual, lethargic, or can’t even hold down water and you know it’s not your GP acting up, the ER will automatically brush every symptom as ITS JUST GP and not do anything.
Seems like every ER is afraid to touch a child that has GP. Seems like many do not even know what safe meds are and aren’t for GP. (My son was given meds for a virus the other day meanwhile his GI said it was one of the worst meds they can give GP person)
I was told by a doctor that i must have been doing drugs when I was pregnant because that is the only reason my son must have GP and rely on a feeding tube to survive.
Throughout the weekend I have been making another awareness video
This one is to show the faces of the feeding tube warriors.
Please show your support
These people are fighting for there life daily please hit like, give the video a thumbs up on YouTube and hit subscribe to see all my other awareness videos.
Good morning everyone! I’d like to just introduce myself a bit to ya’ll.
I’m 47 years young, married with 5 adult ‘children’ 🙂 My husband and I have adopted our oldest grandson, who is 6 and autistic, making him child #6. THEY are my reason for fighting every day!
In 2007, I had an emergency cholecystectomy (gallbladder removal), but NEVER got better 🙁
I’ve tried everything under the sun to treat my symptoms and have had little luck with any of them. I was a gainer for most of this time until about 2 years ago, then all of a sudden I wasn’t. Nothing in my habits changed. I just started dropping weight. FAST. The last time I weighed myself (bear in mind, this is about 6 months ago, because it depresses me that much!), I had lost 84 pounds.
🙁 But, WAIT! I’m still considered a “healthy” weight, so not much concern from my G.I. there. :-/
I still hear stories of others and lack of treatment because of our current weight. Not worrying about the fact the weight loss is completely uncontrolled and unintentional. I was only told to go seek a therapist and stress management classes. That should do the trick?!?!? Yep, suffering with nausea, vomiting (4/5 x/week), bloating, abdominal pain, insomnia, and major weight loss…. all I need is a psychiatrist and talk it out. 🙁 Needless to say, after seeing 4 different G.I.’s, I give up! I give up on seeing any more doctors who only shake their heads at me, almost in disbelief. You know the looks and body language. 🙁 We feel it. It’s hard and the only thing I can do at this point is fight! I cry daily for those we’ve lost in this battle. But the war isn’t over! This is an epidemic and too many of us are needlessly suffering. I hope this group is only the beginning of turning those stones over and pushing them down the hill. <3 They’ll hear us, if not… they will see us!! <3 We aren’t going away!
I’m Sarah, from Colorado. I’m 37, and was diagnosed in May 2 years ago after being sick for many years. At first it was just written off by many doctors, and after finding out what was wrong I’ve realized I probably have had delayed emptying problems my entire life. I’m lucky, I respond well to reglan, and have recently been gaining some of the weight I had lost back. I’m so glad to be here! This is a pic of me tonight, pretty bad pain but still smiling!
I’m Beth, I live in Shelby NC 28150. I’m 58; been on disability due to fibromyalgia since 2007(I’m an RN). Since 2008, have had episodes lasting months/years of nausea, vomiting, pain, bloating; during one of those I lost 80lbs.
I was diagnosed with gastroparesis in January of 2018. Due to flares this year, my quality of life has been severely affected. At times, sips of Sprite and IV fluids is my total intake. It’s exhausting and depressing. I get scared, because doctors and specialists admit, they don’t know much and cannot do much to help.
This is my GP Flare Face; I was in the hospital. Much better right now. I’m thankful for every hour of non-flare!
Also below, my baby Matilda, 2 years old. She keeps me going. I have little family support, but I have her!
Matilda
I also have fibromyalgia, diabetes, high blood pressure, migraines, IBS, and angina. I’m a disabled nurse.
