My Daughter Passed Away From Gastroparesis

Robin H’s Daughter Marni

My daughter, Marni, passed away from GP March 22, 2017. I am forever heartbroken. She was diagnosed with GP 7 years before. She was on TPN 24/7 with home health.

We would go to the ER when the pain was intolerable and they always thought she was looking for drugs. She beat sepsis 5 times… only when she was septic would ER take her seriously.

All doctors and hospitals need more education regarding GP and need to take warriors seriously.

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About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

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