Not A Textbook Case

I was run over by a tractor when i was five years old, don’t
remember the accident and don’t remember most of my
childhood. I did receive a TBI and was told my organs shifted. My mom was told I would have problems but they didn’t know what they would be.


I have gone back and forth to many doctors and specialists and have heard your too complicated, thats not my field, i can’t treat you, stuff like that, oh and its all in your head! 

Finally after many years found Stanford and my specialists there are finally putting the pieces together.

 

So far i have been diagnosed with GP, POTS, TBI, methane predominant SIBO, Mitril valve prolapse, RP, skin cancer, b-12
difficiancy , bladder and colon dont work, being tested for Wilsons, CF and hashimoto. I am so thankful Stanford listened to
me and didnt just write me off. 

I know my body and even though I’m not a textbook case it really makes me upset that doctor’s who took an oath to help people and when you go to the doctor you are supposed to walk out feeling better not worse.

loading spinner
Print Friendly, PDF & Email
About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

Leave a Reply

Please Login to comment
  Subscribe  
Notify of