Testimonial Category: Support H.R. 3396

My wife Jackie has been diagnosed with this horrible disease. The disease has taken away much of her quality of life and has affected her ability work up to the high standards that she always held herself to.

Don’t research what the disease is or what causes it. Look at the individual. If you really look into the effects of this disease on an individual and see what a person goes through every day, then you will better understand why it is important that you support this bill.

Thank you for your time.

My principal where I work fights so hard from this! It breaks our heart to see her dwindling away to nothing and to push so hard with a smile on her face for the sake of the staff and the children! No one should have to go through this! Fund this research! We need a cure! We need our principal!!

I began with what was an unknown digestive disorder. After years of treatment I now have been diagnosed with GP, IBS, Gerd and a host of other GI disorders. I am not alone. There many of us struggling to get help. There is confusion about what causes it (or doesn’t), what to eat, what treatments to use, whats “normal” and on and on. Doctors shrug because there really are no “good” treatments. Many of our medications are black box warning-ed or banned from the US. Many of us can not work due to the severity of our disease(s) but do not qualify for disability because those making the decisions are just as confused (and in many cases misled) about what these conditions are that they fail to see the seriousness and/or quality of life most of us are living. In my case, I was forced to leave a job I loved, denied social security and told by my primary GI that my case was beyond their scope and that I needed to find a new doctor. We need help!

Because I have and several of my friends have this terrible disease.. I don’t feel that the general public, as well as doctors and nurses, have enough knowledge about Gastroparesis!!