Charlotte Giesey

I began with what was an unknown digestive disorder. After years of treatment I now have been diagnosed with GP, IBS, Gerd and a host of other GI disorders. I am not alone. There many of us struggling to get help. There is confusion about what causes it (or doesn’t), what to eat, what treatments to use, whats “normal” and on and on. Doctors shrug because there really are no “good” treatments. Many of our medications are black box warning-ed or banned from the US. Many of us can not work due to the severity of our disease(s) but do not qualify for disability because those making the decisions are just as confused (and in many cases misled) about what these conditions are that they fail to see the seriousness and/or quality of life most of us are living. In my case, I was forced to leave a job I loved, denied social security and told by my primary GI that my case was beyond their scope and that I needed to find a new doctor. We need help!

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