Testimonial Category: Support H.R. 3396

I would like this bill to be supported because like many others, my life matters. I am a mother of 4 beautiful children that is part of our future. I was making my way towards teaching our future and after waking one night extremely ill, it was all taken away from me, my children, and those who I was looking forward to teaching. I am a loving caring person, who goes out of the way to support and help within my community. Due to the lack of education, treatments, and possible cures, I have been thrown from one doctor to the next. No real assistance in managing this condition, let alone thriving with it. The weakness, extreme weight loss, malnutrition, pain within the digestive tract, constant nausea…all makes for a poor quality of life. There needs to be more education to medical personnel, and compassion for the patients, and to understand, no one wants to be sitting in their office or Emergency department. Being labeled as attention seeking or drug seeking. I have been treated as just that when barely able to walk, let alone hold my head up from dehydration and lack of nutrition for an extended period of time. Not just a day or two, but months! There needs to be help, resources, further education on this condition, and a cure! My life matters! My children needs their Mother back! The youth of today needs an educator back!

I have had Gastroparesis since I was born, every day is a challenge just to survive. I suffer from nausea, vomiting, bloating, have had multiple test done, surgeries including gastric stimulator which did not work for me. There is currently no cure for Gastroparesis we need awareness and funding for research. Please support this bill. Thank you from a Gastroparesis Warrior.

I would love for you to support this bill as it truly affects me personally as I consider myself to be a Gastroparesis Warrior. I have been sick since September 30, 2018 and was diagnosed on February 6, 2019. This affects my life every day in a multitude of ways. I have missed 63 days of work within the last year. It has completely affected my social life as I have to truly gauge how I feel on a day-to-day basis if I’m up to socializing. And since gastroparesis has to do with food I have to really be careful and some days I really cannot eat or consume liquids. Funding this bill funding this bill Could help find a cure for this horrible illness that no one should have to live with. Please help!