Testimonial Category: What is your daily life like living with Gastroparesis?

What is my daily life like living with gastroparesis?

I’m on disability at the age of 36. Couldn’t even get regular SSDI because I never accrued enough work credits. I’m sick everyday to some point & degree. I live with my parents now and my Mom is my caregiver. I live in constant pain to a degree in the belly just from all the surgeries I’ve had due to GP and Crohns. Some days are worse, some days I must wear diapers to keep from going on myself. I eat like a grazer. I munch on a few bites here and there. Even the good days I still mostly graze. I get severe waves of nausea some days and some days I just can’t get anything down. I deal with nausea, bloating, and fatigue every single day. I developed multiple other conditions due to my GP and Crohns and daily life is hard dealing with all of this. I never get hungry anymore because my brain basically forgot that my body needs food to survive. Life with GP is difficult, but some days are much better than others, that’s my daily life.

What is my daily life like living with gastroparesis?

Nauseous but hungry at the same time is awful. But a flareup is even worse! I don’t have a lot of energy most days. Sometimes walking hurts my stomach, like I can feel every vibration of every step, in my stomach, so I have to walk slowly and hunched over. I go into an almost remission sometimes, where I feel good, like I can eat, but then I eat too much and then my stomach says “nope you’ve gone too far” and removes whatever I’ve eaten for the past couple of days, in a flareup. I’m on the low end of the spectrum and I can only hope that’s where this terrible condition stays. It’s terribly ironic that I am a Personal Chef and have always loved to cook and EAT I feel like I am slowly losing my drive to cook new things.

What is my daily life like living with gastroparesis?

My daily life is trying to keep nausea and acid reflux under control so I’m able to eat small amounts of food throughout the day. Life for me is to try hard to be really intentional with life choices and food choices to keep things as in balance as possible. Not easy! If a flare starts I practically live in bed until I can regain control again.

What is my daily life like living with gastroparesis?

I always have nausea, abdominal pain and sick like I have to throw up all day. I force 1/2 a cup of food two or three a day. Very hard to move around because I feel weak. Threw up the other day with diarrhea since then the pain, nausea and sick has gotten worse. I can’t wait to fall asleep, then the throw up sick wakes me up. Only take zofran and that isn’t working anymore. Gave up on doctors, they all have brushed me off. Most of my time is laying down in bed with lots of blankets, I am always cold. I think I might have missed a few but I’m sure you got the idea of a day in my life.?

What is my daily life like living with gastroparesis?

Never knowing if I’m going to just be nauseated from a smell, just trying to eat (if I even get hungry), whether eating will make me sick, if for no apparent reason that I will get very sick or be in pain.