Waking up with the flu and going to bed with the flu

What is my daily life like living with gastroparesis?

Waking up with the flu and going to bed with the flu. Exhausted, weak, chronic nausea with the inability to puke. Horrible stomach pain. I have no energy and no desire to get out of bed, let alone take care of a house, my family and show up to work. And can I say depression? I see doctors more than I see my friends.

I am blessed to have a very loving and supportive family though! And some days are better than others. I cherish those SO much.

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I don’t have a life anymore

What is my daily life like living with gastroparesis?

Laying in bed looking at 4 walls with a puke bucket beside me along with my medications.. I don’t have a life anymore.. May I add this is a short version…

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You don’t know what to expect next

What is my daily life like living with gastroparesis?

Constantly in pain, bloated, nauseous, so weak everyday is a challenge. Doctor’s don’t understand you they think it’s all in your head because you might look fine on the outside but in truth inside is a rollercoaster. I get depressed cause I can’t do what everybody else is doing. You just want to be normal again. Food is not a friend, you eat to live not live to eat cause most of what you eat doesn’t stay, it comes out one end or the other or even both sometimes. It’s miserable to have this illness, you don’t know what to expect next.

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I never know if it’s going to be a good day or a bad day

What is my daily life like living with gastroparesis?

I never know if it’s going to be a good day or a bad day. I do all the right things and still sometimes have flares that are debilitating. I am sick constantly so that I have learned to work and live with a degree of constant discomfort or situations like vomiting and going back to what I’m doing that healthy people can’t comprehend.

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Every day is different and unpredictable

What is my daily life like living with gastroparesis?

Every day is different and unpredictable. Today may have been a decent day and I left the house. Tomorrow, I may be puking more times than a drunken 21 year old who rode the tilt-o-whirl a dozen times too many. Today, I may be wishing to see my gray hair days and live as long of a life as possible while tomorrow, I might pray to God that I do not wake up the next morning.

It is organ failure. No other way I can think to describe it to those who have never heard of it. But, we can’t transplant stomachs. We can get rid of them but we can not replace them.

It is something you cannot imagine. No matter what you read from a medical text book or hear from our own mouths …the pain, nausea and changed quality of life with this illness is just… indescribable.

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