Carolyn Sue McBane’s Story

My story is a little different than most. I do not have diabetes. In 2000,  I weighed 310 pounds and had gastric bypass surgery, then gall bladder, then colostomy a year later, but thank goodness it was able to be reversed. I did okay for about 5 years and lost 75 pounds but started having abdominal pain. I had every GI test known to man. It was my young internal medical doctor, Shannon Kennedy, MD, who ordered a GES and finally diagnosed me with GP. In the meantime, a huge hernia was discovered, and I had major surgery.

I believe with the last surgery, nerves were severed, so my muscles couldn’t work food out of my stomach!! I am sick every day, dehydrated, pain, nausea and now have to puree food or eat baby food. Next week I see a surgeon about a feeding tube. GP has robbed me of family, friends and self-worth!! I’ve tried 3 meds with no success. There is no cure, only treat symptoms! I do have my dignity. I try to help others with the same disease. I just became a South Carolina Gastroparesis: Fighting for Change coordinator. I’m fighting for a cure in the ways I can, and I will not give up. If I can stay sober 24 years, with God’s help, I can handle almost anything. God bless those who suffer from GP.  What a ride!!

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About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

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