I’m new to this disorder but am suffering so badly I can’t work and a fear losing my job and insurance. Please help us.
Testimonial Category: Support H.R. 3396
Dorothy Burkhart
After watching my beautiful granddaughter Marissa fall victim to this terrible debilitating disease, it stole her hopes and dreams .She graduated from high school full of hopes and dreams. She joined the Navy and was to report to the school for nuclear engineering to train for duty on a submarine. This thing struck her down suddenly and ended that dream. She endured many hospital visits before it was diagnosed. She had to endure months of hospital visits , including a feeding tube and weeks of not even being able to get out of bed. We need more research on this . Please support this.
Stephanie Reffitt
| I was diagnosed with Gastroparesis five years ago. However I have had gastrointestinal issues for 15 years. Gastroparesis has affected my life tremendously. I am no longer able to work and have a normal life. I stay malnourished, dehydrated, nauseous, and in a lot of pain. Two years ago the doctor placed a gastric stimulator in my stomach to try and help my muscles to work, it works some but not a lot but without it my stomach only works maybe 10%. Gastroparesis means paralyzed stomach so the muscles in my stomach don’t work. Just imagine having a stomach virus and food poisoning all day every day with out it ever easing up. The pain I experience is most of the time debilitating to where I can’t move. If there ever was a bill that needs attention it is this one. We need recognition for the invisible illnesses that we suffer mostly in silence because there isn’t enough people that knows and understands what we go through everyday. Please take a look at this bill and help us to get help. |
Ruth Hufford
A good friend of mine has been afflicted with gastroparesis so I know what pain and suffering she has gone through. Since there is no cure at this time, I’d like to strongly support this research.
Stefanie Lewis
My best friend of 37 years has this horrible disease. I’ve taken her to so many Dr appts over the years and have seen first hand how it’s affected her physically and mentally!!!! More research NEEDS to be done. SHE had to do all the research to find out what she had! So little is known about it that she had to fight repeatedly to get someone to acknowledge the disease and believe her! No one should have to do that.