| I have been suffering with Gastroparesis and swallowing issues for a year now and can’t believe that the treatments are so limited. The medicine that’s out there is so dangerous and make things worse with horrible side effects. We need more we need a cure!!! |
| I have suffered from diabetic gastroparesis for a decade. I’ve almost lost my life several times and I’m only 31. I’m hospitalized roughly every four weeks for motility related illness. Everything from sepsis to diabetic ketoacidosis. Here’s the kicker, mines not even close to how bad some get. If this isn’t done for adults, then so be it. But the children and babies suffering for no reason have a right to proper treatments and top of the line medications. Motility disorders are very hard to handle and we struggle with every bite or drink we take on the days our bodies let us even ingest nutrients at all. |
| I’m writing this in hopes to help bring awareness and hopefully a cure to a horrible disease called gastroparesis. My beautiful daughter,Marni, suffered from GP for almost 10 years before she passed away from the complications it causes. Having GP is worse than having the flu each and every day of your life. My daughter was one of many that could not eat or drink and was TPN dependent. She had a G tube, a J tube and a central line. Her medication (that really didn’t help that much) went through her tubes since she couldn’t take them orally and she suffered from malabsorption. She was on TPN 24 hours a day every day which ran through her central line. There is no cure! She fought sepsis 6 times and survived… what a fighter and strong warrior. She passed away March 22, 2017; from complications… sepsis, her heart just gave up and malnutrition.
I’m writing this because too many have died at such a young age (my daughter was 32) and the medical community needs to find a cure and society needs to help spread awareness. Fly high my sweet angel… |
We are literally starving to death, treated horribly by doctors and labeled as drug seekers when we come into the ER for flare-ups. As a diabetic my sugar gets processed too fast or not fast enough, making it very danger for diabetics. Symptoms are barely treated and we’re tired of hurting and being nauseous, and hungry and unable to be in high humidity and many other symptoms. We need more research and awareness. Please support this bill for people like me just trying to live life as best I can.
| I have gastroparesis. There is no cure. I am exhausted all the time. I am deeply saddened by people dying every day from this illness. We need a cure! |