Gastroparesis: Fighting For Change > Leslie Hughes

Leslie Hughes

Posted on September 9, 2019 by Debbie Popp

I have gastroparesis. There is no cure. I am exhausted all the time. I am deeply saddened by people dying every day from this illness. We need a cure!

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Gastroparesis: Fighting for Change

04/16/24

"A student whose artwork was inspired by her chronic health conditions has said she will ‘keep drawing stoma bags until everyone knows they exist.’"
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Norwich student shares artwork inspired by chronic illness

bbc.com

An art student shares her paintings of her life with a stoma bag to show the importance of openness.

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Gastroparesis: Fighting for Change

04/12/24

If you, or anyone in your network would qualify, help spread the word! If interested, see link in comments.
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Gastroparesis: Fighting for Change

04/12/24

Register at oley2024.vfairs.com/en/"Attending the Oley patient (consumer) education conference can be a valuable experience for anyone who is seeking to learn how to live on nutrition support therapies (tube feeds or parenteral nutrition) and connect with other patients (consumers), caregivers, healthcare providers, and industry experts. This annual conference brings together people from different walks of life, with diverse backgrounds and experiences, to share information, resources, and support."Registration is now OPEN for the 2024 Oley Annual Consumer Conference! Secure your spot today and get ready for an unforgettable experience filled with excitement, learning and connections. Don’t miss out – sign up now! Have questions or issues registering, please reach out to info@oley.org so we can help!
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Gastroparesis: Fighting for Change

04/09/24

PAID PARTICIPATION OPPORTUNITYFor more information and registration, please see auckland.au1.qualtrics.com/jfe/form/SV_2nJ1ZVT5pzLUw5g"To take part you must be 18 years or older, be able to speak, read, and write fluently in English, and meet the diagnostic criteria or have been previously diagnosed with any of the following conditions; gastroparesis, functional dyspepsia, chronic nausea and vomiting syndrome, cyclic vomiting syndrome, rumination syndrome, or a belching disorder.As the interviews will be conducted online, people from any country can participate. If you are unsure if you meet these criteria, you can complete the screening questionnaire and theresearchers will assess your eligibility…If you are eligible for this study and agree to take part, we will ask you to join us for an online interview. Before the commencement of the interview, you will be asked to complete a short, online questionnaire… The interviews will be held via Zoom, a web-based conferencing platform, and will take up to 30 minutes."Compensation: $30NZD, converted to your local currency.
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Gastroparesis: Fighting for Change

04/07/24

Misdiagnosed superior mesenteric artery syndrome due to diabetic gastroparesis: www.sciencedirect.com/science/article/pii/S2210261224003249#gastroparesis #SMAS #diabetes
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www.sciencedirect.com

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Gastroparesis: Fighting for Change

04/07/24

"Female sex hormones have been hypothesized to influence the higher prevalence of gastroparesis in females. This study investigated the effects of hormone replacement therapy (HRT) on gastroparesis and its related symptoms, medication use, and diagnostic testing in post-menopausal women…Our study revealed that prescriptions for hormone replacement therapy were associated with an increased risk of developing an ICD encounter diagnosis of gastroparesis in post-menopausal women. The longer post-menopausal women had been prescribed HRT, the more their risk of developing gastroparesis increased…We found that the post-menopausal women prescribed HRT were statistically significant associated with an increased risk of the development of early satiety, abdominal distention, epigastric pain, generalized abdominal pain, nausea and vomiting, and constipation. These findings support the notion that HRT is associated with delayed gastric emptying, contributing to these GI symptoms…In summary, our study demonstrated that HRT being prescribed in post-menopausal women is associated with an increased risk of developing an ICD encounter diagnosis of gastroparesis over time. Additionally, we found a significant association between HRT and elevated gastrointestinal side effects, medication use, and a higher likelihood of undergoing diagnostic tests and procedures compared to post-menopausal women not prescribed HRT. This study highlights the potential impact of estrogen and progesterone supplementation in HRT on gastrointestinal motility. Further investigation is warranted to elucidate the long-term effects of HRT on the gastrointestinal tract."www.mdpi.com/2698320#Gastroparesis #CureGP
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The Association between Hormone Replacement Therapy and Gastroparesis in Post-Menopausal Women: A Worldwide Database Analysis

www.mdpi.com

Female sex hormones have been hypothesized to influence the higher prevalence of gastroparesis in females. This study investigated the effects of hormone replacement therapy (HRT) on gastroparesis and…

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Gastroparesis: Fighting for Change

04/02/24

Prokinetics-safety and efficacy: The European Society of Neurogastroenterology and Motility/The American Neurogastroenterology and Motility Society expert review: pubmed.ncbi.nlm.nih.gov/38462678/doi.org/10.1111/nmo.14774
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Prokinetics‐safety and efficacy: The European Society of Neurogastroenterology and Motility/The American Neurogastroenterology and Motility Society expert review

doi.org

Background Prokinetics are a class of pharmacological drugs designed to improve gastrointestinal (GI) motility, either regionally or across the whole gut. Each drug has its merits and drawbacks, and…..

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Gastroparesis: Fighting for Change

03/31/24

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Gastroparesis: Fighting for Change

03/29/24

"No evidence of gastrointestinal symptom relief when applying short-term high-intensity or long-term medium-intensity cervical tVNS in individuals w/diabetic gastroenteropathy compared with sham stimulation."rdcu.be/dCWej#Gastroparesis #CureGP
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rdcu.be

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Gastroparesis: Fighting for Change

03/29/24

www.globenewswire.com/news-release/2024/03/27/2853148/0/en/Renexxion-Ireland-Ltd-and-Dr-Falk-Phar…
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Renexxion Ireland Ltd. and Dr. Falk Pharma GmbH Announce FDA Clearance of the Investigational New Drug Application for Naronapride to Treat Gastroparesis and Subsequent Expansion of the Ongoing Phase 2b MOVE-IT Study to the United States

www.globenewswire.com

ROSCREA, Ireland and FREIBURG, Germany, March 27, 2024 (GLOBE NEWSWIRE) — Renexxion Ireland Limited (“Renexxion”), a private biopharmaceutical company…

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