I Played Professional Roller Derby

Hi, my name is Christy,  I am 43 years old and was diagnosed with GP 2 years ago. I am a mother of four beautiful girls. I also suffer from Fibromyalgia, Diastolic Dysfunction and Chronic IBS. 

Because of my illness I battle depression on a daily basis. I have recently gone on long term disability through my employer because it has gotten too difficult  to perform normal daily tasks. I never seem to have enough energy to even do simple things like go to the store. I’m constantly nauseated and if I get out into the summertime heat it worsens. 

First of all it’s difficult being this young to feel like death is knocking at your door. I played professional Roller Derby for 9 1/2 years. I even tried out for team Texas in Austin Texas one year. I also had a license as a CNA, a dialysis tech, an EMT basic and was trained in water rescue and would work as a lifeguard part time during the summer. So you can say I used to stay real active. Now it’s all gone. 

The worst part is there is a surgery that my doctor says might help my symptoms but I cannot get that surgery. Since I am no longer working I cannot afford to get good insurance. I am on a local program to help with my medical until i can qualify for government disability and receive Medicare. Because my Dr. Is the best here to handle my disease i have to pay out of pocket for him because he is not covered under this program. The closest Dr.  he consulted  to perform this surgery is 8 hrs away and I would have to pay out of pocket for him and the surgery as well. 

To top all of that off I can not take the FDA approved meds for my GP due to the risks associated are too high given I have a heart problem.  The meds I am able to get are starting to not work. So daily I alternate Zofran and Phenergan to help with nausea and that also zaps what remaining energy I have out of me. 

Living with this disease is a nightmare. I have more bad days than good. I can only hope and pray that one day they will find a cure, that more Drs. will specialize in this area and that we will be able to get the help we need without taking food from our table. Most of all I hope more people will be made aware of the difficulties associated with GP. Maybe then people will stop telling us to get over it.

loading spinner
Print Friendly, PDF & Email
About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

Leave a Reply

Please Login to comment
  Subscribe  
Notify of