Nicole’s Story

Hi all ! My name is Nicole and I was diagnosed with Gastroparesis in 2017. I was however having symptoms two years beforehand! Two years ago I randomly fell really sick on holiday in Portugal. One night i vomited everything I had eaten. I lost my appetite for a week, living off practically water. I was at a scary low weight by this point.

My parents took me to a private doctor who told me I had ‘depression’ and ‘anxiety’ (yes- i was depressed from not being able to eat and the nausea!!!). I was then put on anti depressants and some vitamins. A month later I started to feel a little better, but kept getting random nauseous episodes where I would just feel randomly sick. 

 

I never vomited again but I never felt ‘normal’. On top of that I was burping an abnormal amount of times a day! This went onfor two years before I decided to get it investigated further. The doctors kept telling me ‘it’s nothing serious’ but I knew something wasn’t right. Their question was always ‘ Are you sure you aren’t pregnant?’ !!!!!

By this time, my nausea was chronic, never ending, morning until night. I was at university at the time and they assumed my symptoms were from stress. I was losing weight. I underwent various tests: blood tests, stool tests, endoscopies, ultrasounds, MRIs, everything coming back normal apart from getting told I had a hiatal hernia and bad GERD. Hence I was put on PPI’s which didn’t really help anything!

I honestly thought I was going insane and was at my wit’s end. I was finally referred to a gastroenterologist who diagnosed me with ‘ Idiopathic Gastroparesis’ after a gastric emptying study. This means: partial paralysis of the stomach, the stomach takes too long to empty. Cause: Unknown. I had never heard of it before but it quite frankly scared me, especially knowing that some people end up with feeding tubes as their stomachs completely shut down. Treatment options are very limited and there is no cure. I went and researched Gastroparesis online and honestly cried my eyes out at the results. The internet is full of negative stories and information. The information itself is so limited and even specialists are clueless about this condition! Everyday is a massive battle . But I keep smiling, I won’t let this monstrous disease win. Life is too beautiful for that!

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About the author: Gastroparesis: Fighting For Change Admin

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.”

Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you!

You can find links to our Community Page and our Advocacy Group on our Resources Tab.

In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

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