I was finally diagnosed with gastroparesis in 2014, after 10 years of hell. I also was diagnosed with colonic inertia. Both of these mean my stomach and intestines don’t work. In 2016 lost my large intestines and had 3 months with an ostomy. I also was given all my nutrition from TPN. I also needed multiple infusions of magnesium and potassium, and blood transfusions, because my hemoglobin dropped extremely low. I have spent many months in the hospital and came close to dying so many times, because of the disease and due to having picc lines in me many infections that went septic. Hospital personnel have made mine and many like me life hell, because they are not taught about this disease. Everything offered to help is hit and miss and come with with risk of side effects. Please help us find treatments. Too many have already lost their battle with this disease. This disease is another that is invisible. Meaning our insides are dying, and always in pain, and our outside looks good. We aren’t lazy, looking for attention, in our head that so many are accused of. We are strong women, men, and children who deal with so much and try to keep going until the body gives out again. Thank you for any help you give us.
