I went from working to being worn out

What is my daily life like living with gastroparesis?

My daily life went from working my tail off 7 days/week to suddenly no energy. No nothing. Just sick. At that pesky little vagus nerve …bradycardia and tachycardia. Also Dysautonomia and Ehlers-Danlos Syndrome.

It has meant I went from working (in my 30s) to being worn out just sitting upright on a couch all day.

I dread activity.

The constant nausea is unbearable but after a couple of years, you accept it as normal as you have forgotten how normal truly feels.

Not being able to eat foods I once loved and sometimes nothing at all.

Days are full of feeble attempts to try to manage the symptoms. It is hoping I do not have to go to the ER for IV fluids only to be lectured by another ER doc about wasting their time or being treated as though a drug addict looking for a fix. (PS, no matter what horrible level of pain I am in, I always always always turn down pain meds in the Hope’s that I am taken seriously)

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