What is my daily life like living with gastroparesis?
My daily life went from working my tail off 7 days/week to suddenly no energy. No nothing. Just sick. At that pesky little vagus nerve …bradycardia and tachycardia. Also Dysautonomia and Ehlers-Danlos Syndrome.
It has meant I went from working (in my 30s) to being worn out just sitting upright on a couch all day.
I dread activity.
The constant nausea is unbearable but after a couple of years, you accept it as normal as you have forgotten how normal truly feels.
Not being able to eat foods I once loved and sometimes nothing at all.
Days are full of feeble attempts to try to manage the symptoms. It is hoping I do not have to go to the ER for IV fluids only to be lectured by another ER doc about wasting their time or being treated as though a drug addict looking for a fix. (PS, no matter what horrible level of pain I am in, I always always always turn down pain meds in the Hope’s that I am taken seriously)
