Author: Gastroparesis: Fighting For Change

We created this website to provide the public with additional information regarding Gastroparesis. It is our goal to connect users with our Facebook advocacy group, “Gastroparesis: Fighting for Change.” Our Gastroparesis: Fighting for Change Facebook group was formed to unite people with Gastroparesis and other digestive and motility disorders to work for change. It is not a typical GP support group, as we do not discuss personal medical issues. Rather, we established this as a place where members can discuss ideas regarding our mission, vision, goals, needs, services, and resources to work toward solutions. So if you want to make a difference for our GP community, we encourage you to share your ideas! Additionally, we need you to help us fight for changes in legislation! Also, you can help raise funds! Finally, you can help spread awareness! Please join our main group. We would love to have you! You can find links to our Community Page and our Advocacy Group on our Resources Tab. In order to accomplish our goals, we will be sharing many ways you can get involved on our Campaigns Tab.

Gastritis And Chronic Slow Transit

Posted on by Gastroparesis: Fighting For Change
Victoria Holland

I suffer with severe gastritis. I am on a very strong stomach tablet and 3 sickness tablets a day. My stomach is red raw
and has scars from where its been bleeding. I was told from the stomach samples took, it is severely burned.

I have tried all stomach tablets but my condition keeps getting worse. Anemia I have bad from bleeding in the stomach and bowel. I also have a chronic slow transit and my bowel stopped working too. Had major surgery 4 years ago, going in soon for another major bowel surgery.

Feeling sick no matter if I eat or don’t eat 24/7. I was told my stomach was covered in a thick cream looking. They asked had I been eating or took my pills before it, no. They told me after it is because my stomach is so severely burned and a nasty form of gastritis.

I have had a lot of different health problems and doctors have learned from me lots of things they didn’t before. Like they say I can never have something normal, it’s new to them or I have 3 problems going on at the same time. In all I live with 50 chronic and complex health problems. Admin on Facebook as well.

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GP Is Not Going To Win

Posted on by Gastroparesis: Fighting For Change
Nathalie Gras-Monahan (Mom of Sydney)

I’m sharing my daughters post not only because I’m so incredibly proud of her but to show also that GP has not stopped her to follow her dreams and hopefully give hope to some others out there!! Diagnosed almost 3 years ago, has been through hell & back, is a tubie but has so much determination to not let this horrible disease control her life!!
#GPwarrior

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Having A Baby With Gastroparesis

Posted on by Gastroparesis: Fighting For Change
Sara Nesti

My story is different but this time I hope to help some people. I had many problems with my stomach and after many times that I had nasogastric tube, I had my surgery Iatoplastic and fundoplication.

I had a baby but for me, having a baby is dangerous! In fact when my son was born, I had an intestinal infection that made me near death. I again had to have a nasogastric tube and I was in the hospital for a month. I want another baby despite all the difficulties because I don’t give up. After the birth of my son and having all the problems, I’m here! I’m a survivor and I want to help other people.

This picture for me means a lot. It’s a picture with my son when I was in the hospital when he was born. This is my different story but i want to help all people that have and had digestive desease as me because nobody is alone.

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Darlene’s Story

Posted on by Gastroparesis: Fighting For Change
Darlene Gorgoretti

October 30, 2006 – Gastric bypass surgery

December 15, 2006 – Admitted to hospital since could not keep
anything down

December 28, 2006 (my birthday) – Vagotomy and had my GJ
feeding tube put in during surgery

April 17, 2007 – had gastric bypass revision

January 11, 2011 – had my gastric bypass reversed

I was in and out the hospital many times during this time – many
EGD’s

November 02, 2012 – Officially diagnosed with GP – at Temple

April 14, 2015 – Went on disability and had to switch insurance –
started to go to Johns Hopkins and have had good care so i still see several doctors

Can’t have the gastric stimulator since i get MRSA anytime something foreign is put in my body

No other surgeries can be done safely since i have a blood clotting disease, uncontrolled diabetes, and after last knee surgery i
went into respiratory failure

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Nicole’s Story

Posted on by Gastroparesis: Fighting For Change

Hi all ! My name is Nicole and I was diagnosed with Gastroparesis in 2017. I was however having symptoms two years beforehand! Two years ago I randomly fell really sick on holiday in Portugal. One night i vomited everything I had eaten. I lost my appetite for a week, living off practically water. I was at a scary low weight by this point.

My parents took me to a private doctor who told me I had ‘depression’ and ‘anxiety’ (yes- i was depressed from not being able to eat and the nausea!!!). I was then put on anti depressants and some vitamins. A month later I started to feel a little better, but kept getting random nauseous episodes where I would just feel randomly sick. 

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